WEBVTT HELPING MAKE A DIFFERENCE.>> I COULDN'T MOVE MY TOES IN MYRIGHT FOOT.IT WAS THE ONLY SYMPTOM I HAD.ERIKA: CAROL ROTH THOUGHT MAYBESHE PINCHED A NERVE OR WORE THEWRONG SHOES.BUT AN MRI QUICKLY CONFIRMED THEWORST, A TUMOR PRESSING ON THEPART OF HER BRAIN THAT CONTROLSMOVEMENT.IT WAS VERY ADVANCED.>> GLIOBLASTOMA STAGE 4 IS ANEXTREMELY AGGRESSIVE FORM OFTERMINAL BRAIN CANCER.ERIKA: CAROL ENDURED WEEKS OFCHEMOTHERAPY AND RADIATION NEARHER HOME IN CHARLOTTE, NORTHCAROLINA.BUT HER BEST HOPE FOR TREATMENT?A CLINICAL TRIAL INVOLVINGIMMUNOTHERAPY AT DANA-FARBERCANCER CENTER IN BOSTON.>> I WANTED TO SAVE MY LIFE,WHICH IS WHY I SAID, OK, LET'SDO THE TRIAL AS SOON ASPOSSIBLE.ERIKA: BUT ARRANGING HER TRAVELFROM CHARLOTTE TO BOSTON, ANDHOW TO PAY FOR IT, WASCOMPLICATED.CRACKS SO THESE ARE ALL MY-- >> SO THESE ARE ALL MYFLIGHTS.>> IT MAY BE MUCH HARDER FOR YOUTO PARTICIPATE IN WHAT COULDPOTENTIALLY SAVE YOUR LIFE.ERIKA: JONATHAN JACKSON DIRECTSA PROGRAM AT MASS GENERALHOSPITAL TO INCREASE ACCESS TOCLINICAL TRIALS, ESPECIALLY FORMINORITIES AND LOW-INCOMEPATIENTS.>> IF WE CAN GET EVERYBODYINVOLVED IN THE QUEST FOR ACURE, WE KNOW THAT WHEN WEANNOUNCE A CURE, THAT IT WILLWORK FOR EVERYBODY.ERIKA: BUT A MAJOR HARDSHIP ISMONEY.PATIENTS FIND THEMSELVES PAYINGFOR TRAVEL, PARKING, BABYSITTERSJUST TO PARTICIPATE.IN FACT, JACKSON'S RESEARCHSHOWS ABOUT 20% TO 30% OFPATIENTS ENROLLED IN THE TRIALSCAN NO LONGER AFFORD THEIR BASICNEEDS.>> THEY'RE NOT PAYING THEIRMORTGAGE.THEY'RE NOT PAYING THEIRTHEY'RE ALSO NOT BUYING FOOD.BECAUSE THEY WERE SPENDING ALLOF THEIR MONEY ON TRYING NOT TOBE SICK ANYMORE.ERIKA: JACKSON'S TEAM PARTNEREDWITH LAZAREX, A FOUNDATION THATPROVIDES FINANCIAL HELP ANDADVICE TO CANCER PATIENTS SOTHEY CAN PARTICIPATE.>> THIS ISN'T AN ACT OF CHARITY.THIS IS HOW WE DISCOVER NEWCURES.SO WE NEED RACIAL AND ETHNICDIVERSITY.WE NEED SOCIO-ECONOMICDIVERSITY.WE NEED PEOPLE WHO LIVE IN THECOUNTRY VERSUS PEOPLE WHO LIVEIN THE CITY.ERIKA: IN CAROL'S CASE, LAZAREXCOVERED 50% OF HER PLANE FARESAND HOTEL BILLS.>> I COULDN'T ASK FOR ANYTHINGMORE.THAT JUST HELPS SO MUCH.ERIKA: AND AT DANA-FARBER, SHESAW HER HEALTH IMPROVE.>> I HAVE MY LIFE BACK.AND I WOULDN'T HAVE HAD IT IF IDIDN'T, IF I WASN'T ON THISTRIAL.ERIKA: THERE IS A BILL PENDINGIN THE STATE LEGISLATURE RIGHTNOW THAT WOULD HELP CLARIFYWHICH NON-MEDICAL EXPENSES CANBE COVERED IN CLINICAL TRIALS.REEARCHERS HOPE IF THEY CANOFFER MORE REIMBURSEMENTS, THEN